UKSCIRN Projects 2013
Current and Completed Projects - Feb 2013:
SCI32 MRI Appearance of Heterotopic Ossification in Subacute Spinal Cord Injuries: A Multicentre Study to Establish Prevalence and Natural History. DR LUIS DE HEREDIA (NSIC, Stoke Mandeville Hospital) with participating centres; Oswestry and Stanmore). Portfolio status applied via exceptional route, outcome pending Feb 2013.
SCI17. Improving Outcome after Spinal Cord Injury by Monitoring and Reducing High Cord Pressure Mr MARIOS PAPADOPOULOS (St Georges, London), David Choi (National Hospital for Neurology & Neurosurgery) and Kia Rezajooi (Stanmore). Phase 1:Commenced August 2010. Phase II: Now commencing. See Winter 2011 edition of UKSCIRN's SCIence Magazine for summary of early results for phase 1.
SCI18. The Impact and Effect of Vertebral Artery Trauma in Spinal Cord Injured Patients Dr DAVID MCKEAN. Commenced Jan 2010. Target patients recruited as of Jan 2013 with participation by Stanmore SCIC. Initial report submitted to UKSCIRN; final report pending. Analysis ongoing. See Winter 2011 edition of UKSCIRN's SCIence publication for summary.
SCI2. The impact of a stoma in bowel management after SCI DR MAUREEN COGGRAVE (NSIC, Southport, Stanmore, Pinderfields, Salisbury). Currently Disseminating (eg spinal cord). Analysis complete. See Winter 2011 edition of UKSCIRN's SCIence publicaton for summary.
‘Take home message: A stoma improves quality of life for individuals with SCI who have significant bowel management difficulties; information regarding stoma formation and its outcomes in SCI individuals should be provided early after injury to facilitate informed decision making. Dissemination ongoing.
SCI1. Lower Limb Fractures in Chronic Spinal Cord Injury.
EBBA BERGSTROM (SMH), Prof Frankel. SMH & Oswestry. Currently disseminating (ISCOS). Report submitted to UKSCIRN. See Winter 2011 edition of UKSCIRN's SCIence publication for summary of findings.
SCI19 Understanding the Well-being and Care of Persons with Spinal Injury in an Isolation Ward as a result of Pressure Sores. Commenced March 2010. BRETT SMITH (L’Brough), Paul Kennedy (SMH), Helen Smith (Stanmore). Final report submitted and circulated Dec 2010 also in newsletter from the Peter Harrison Centre for Disability Sport, Issue 8 Winter 2010/11. Also see Winter 2011 edition of UKSCIRN's SCIence magazine for summary of findings.
SCI8 Changes in Wheelchair Provision to People with Spinal Cord Injury in the UK. LONE ROSE. All UKSCIC apart from Rockwood. Commenced 2006. Final report submitted and circulated. Dissemination ongoing (e.g. MASCIP). See Winter 2011 edition of UKSCIRN's Science Magazine for summary of findings.
Project Development 2013
HS&DR Application - Researcher Led Workstream - lead: Prof Charles Greenough. Programme Manager: Dr Sally Halsall
'A Contemporaneous Evaluation of a Coordinated System of Care for Trauma in National Spinal Cord Injury Care Pathways (NSCP)'Submitted Jan 2013. Outcome expected April 2013.
Development of National Clinical Guidelines for the Management of the Tetraplegic Upper Limb - Completion expected June/July 2013
Mr Pradeep Thumbikat (Chair), MSc, FRCS (glasg), SCI Consultant, Princess Royal Spinal Injuries Centre, Sheffield (Lead 1)
Dr Kidangalil Mathew(joint Chair), MB, BS, DPMR, DNB (PMR), MBA (Lon), SCI Consultant, Princess Royal Spinal Injuries Centre, Sheffield (Lead 2)
Samantha Burch, Occupational Therapist, The London Spinal Injuries Unit, RNOH, Stanmore
Mr Tim Hems DM, FRCS(Eng), FRCSEd(Orth), Consultant Hand and Orthopaedic Surgeon, The Queen Elizabeth National Spinal Injuries Unit, Glasgow
Emma Linley, Occupational Therapist, The London Spinal Injuries Unit, RNOH, Stanmore
Mr Simon Pickard, MB, BS (Lon), FRCS (lr) FRCS (Tr& Orth), Consultant Orthopaedic Surgeon, The Midlands Centre for Spinal Injuries, RJAH, Oswestry
Laura Bochkoltz, Physiotherapist, International Spinal Injury & Rehabilitation Centre (formally Royal Bucks), Aylesbury
Ruth Peachment, Occupational Therapist, National Spinal Injuries Centre, Stoke Mandeville
Leslie Wallace, Upper Limb Hand Specialist Occupational Therapist, The Queen Elizabeth National Spinal Injuries Unit, Glasgow
Sally Halsall, PhD, Programme Manager, UK Spinal Cord Injury Research Network (UKSCIRN)
With thanks also to Lindsay Dutton, patient representative and former Patient Education Coordinator , National Spinal Injuries Centre, Stoke Mandeville Hospital, Alison Mannion, Therapy Lead, The Midlands Centre for Spinal Injuries, RJAH, Oswestry,Soo Oh, Sarah Leighton and Rachael Jones, Princess Royal SIC, Sheffield
Aging and Lifelong Care; What Research is important to people with Spinal Cord Injury?
Note: this is not an NHS research project as it is lead from Oxford Brookes University with participants recruited outside the NHS. UKSCIRN are collaborating on this qualitative study to help to determine a programme of research by exploring issues of aging and lifelong care which are of importance and concern to people with SCI and their carers. Results will inform future NHS research projects in the area of aging and lifelong care.